A few years ago my brother told me about a book he and his wife had read called "The Miracle of Meghan" It is written by the Mother of a girl who has Turner's Syndrome. She found out before the baby was born that she would have Turner's Syndrome. Todd thought I would be interested in this book because I was diagnosed with Turner's Syndrome when I was 11 years old.
I finally got this book out of the library and finished reading it last night. Reading about about this Mother's experience was very interesting to me. I saw myself in a lot of things this woman experienced with her daughter. I learned that a lot of things that I struggle with have to do with this birth defect. I am happy with who I am and if I do say so myself I have dealt with my challenges and short comings very well. I will never use my diagnosis as an excuse but learning more about Turner's Syndrome does help me learn how to better adjust and face my challenges.
I am not Turner's Syndrome but Turner's Syndrome is part of who I am and I have to live with it, make the best and try to grow from it just like anyone else does from their challenges. Having Turner's Syndrome effects me everyday but I don't let if run my life. I can use my strengths to help me overcome my weaknesses. Yes, I do have a lot of strengths and I try to use them to improve my life and the lives of those around me. My Mom thinks that having Turner's Syndrome has helped me to be more patient and understanding with the challenges and short comings of others, especially the elderly and those with disabilities. I think she may be right.
One thing I would like to do is get in touch with other girls and families that are dealing with Turner's Syndrome. I feel like I could help them and they could help me. Support is always so important. I know that reading this book helped me feel better about my self and I don't feel so bad about the things I struggle with that are related to having Turner's Syndrome.
I was very blessed to have a Mother that helped me grow up to be a well adjusted and capable adult. I owe a lot of who I am to her. We didn't find out I had Turner's Syndrome until I was 11 so she had no idea what she was dealing with for a lot of my growing up years. Even when I was diagnosed there was not a lot of information available so she still did not know what she was dealing with. I am so grateful that she is my Mom and that she has had such a wonderful influence in my life.
The rest of my family have been a great support to me as well. Everyone struggles with different things and as a family we deal with it and support each other the best we can. My Turner's Syndrome has just been one of those things. I know it has effected my whole family even when they didn't know that some of the things they have had to put up with from me had to do with my Turner's Syndrome. It didn't matter. They all love me, accept me and support me anyway.
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